HHT Patients' quality of life under the microscope
NCT ID NCT07191639
First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 26 times
Summary
This study looked at how symptoms of Hereditary Hemorrhagic Telangiectasia (HHT) impact quality of life. Researchers used a special questionnaire created by patients to measure different aspects of well-being. 185 adults with HHT took part to help doctors better understand which symptoms matter most.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Hôpital Femme-Mère-Enfant - Centre de référence pour la maladie de Rendu-Osler
Bron, 69500, France
Conditions
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