Researchers track rare heart disease to unlock its secrets
NCT ID NCT06214507
First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 34 times
Summary
This study follows 60 people with Danon disease, a rare genetic heart condition, to see how it progresses. Participants include males 8 and older and females 8 to 50. Researchers will measure heart size, blood markers, and quality of life to better understand the disease and help design future treatments.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Azienda Ospedaliera Universitaria Meyer IRCCS
RECRUITINGFlorence, 50139, Italy
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Columbia University Medical Center/New York Presbyterian
RECRUITINGNew York, New York, 10032, United States
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Contact Email: •••••@•••••
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German Heart Center Munich
RECRUITINGMünchen, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospital Universitario Puerta de Hierro Majadahonda
RECRUITINGMajadahonda, Madrid, Spain
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Phoenix Children's Hospital
RECRUITINGPhoenix, Arizona, 85016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Sheba Medical Center
RECRUITINGRamat Gan, 5265601, Israel
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Texas Children's Hospital
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University College London - Great Ormond Street Institute of Child Health
RECRUITINGLondon, WC1N 1DZ, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of California, San Diego
RECRUITINGLa Jolla, California, 92037, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida College of Medicine
RECRUITINGGainesville, Florida, 32610, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
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Contact Email: •••••@•••••
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Washington University
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.