Researchers track rare heart disease to unlock clues for future therapies
NCT ID NCT06214507
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 32 times
Summary
This study observes 60 people with Danon disease, a rare genetic heart condition, to see how it changes over time. Participants include males 8 and older and females 8 to 50. The goal is to better understand the disease, not to test a treatment.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Azienda Ospedaliera Universitaria Meyer IRCCS
RECRUITINGFlorence, 50139, Italy
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Columbia University Medical Center/New York Presbyterian
RECRUITINGNew York, New York, 10032, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Email: •••••@•••••
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German Heart Center Munich
RECRUITINGMünchen, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospital Universitario Puerta de Hierro Majadahonda
RECRUITINGMajadahonda, Madrid, Spain
Contact Email: •••••@•••••
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Phoenix Children's Hospital
RECRUITINGPhoenix, Arizona, 85016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Sheba Medical Center
RECRUITINGRamat Gan, 5265601, Israel
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Texas Children's Hospital
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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University College London - Great Ormond Street Institute of Child Health
RECRUITINGLondon, WC1N 1DZ, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Contact
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University of California, San Diego
RECRUITINGLa Jolla, California, 92037, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida College of Medicine
RECRUITINGGainesville, Florida, 32610, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
Contact
Contact Email: •••••@•••••
Contact
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Washington University
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.