Global data pooling aims to unlock secrets of rare muscle disease
NCT ID NCT07443449
First seen Mar 09, 2026 · Last updated Apr 29, 2026 · Updated 7 times
Summary
This study connects existing patient registries from 11 countries to analyze data from 700 people with spinal and bulbar muscular atrophy (SBMA). Researchers will compare medical records, test results, and disease progression over time. The goal is to better understand how SBMA develops and changes, without testing any new treatments.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for SBMA are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Locations
-
Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, 20133, Italy
Conditions
Explore the condition pages connected to this study.