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Lifeline for bleeding disorder: free daily shots offered in compassionate program

NCT ID NCT04921956

First seen Oct 31, 2025 · Last updated May 22, 2026 · Updated 31 times

Summary

This program provides free daily injections of concizumab to people with congenital haemophilia who need better treatment. Participants will be monitored for safety and how well the medicine works over several years. The program is for those with severe haemophilia A or B, with or without inhibitors.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Augusta University

    AVAILABLE

    Augusta, Georgia, 30912, United States

  • BI-LO Chrt Childn's Cancer Ctr

    AVAILABLE

    Greenville, South Carolina, 29605, United States

  • Children's Hosp-New Orleans

    AVAILABLE

    New Orleans, Louisiana, 70118, United States

  • Children's Hospital Los Angeles - Endocrinology

    AVAILABLE

    Los Angeles, California, 90027, United States

  • Children's Hospital of Michigan

    AVAILABLE

    Detroit, Michigan, 48201, United States

  • Children's Nebraska

    AVAILABLE

    Omaha, Nebraska, 68114, United States

  • Childrens Hospital of Chicago

    AVAILABLE

    Chicago, Illinois, 60611, United States

  • Connecticut Children's Medical Center

    AVAILABLE

    Hartford, Connecticut, 06106, United States

  • Cook Children's Hospital-Hematology-Oncology

    AVAILABLE

    Fort Worth, Texas, 76104, United States

  • ECU Sickle Cell Comp Clinic

    AVAILABLE

    Greenville, North Carolina, 27834, United States

  • Georgetown University Medical Center

    AVAILABLE

    Washington D.C., District of Columbia, 20007, United States

  • Indiana Hemophilia-Thromb Ctr

    AVAILABLE

    Indianapolis, Indiana, 46260, United States

  • Koagulationsmottagningen

    AVAILABLE

    Solna, 171 64, Sweden

  • Louisiana Ctr for Adv Med-LCAM

    AVAILABLE

    Madison, Mississippi, 39110, United States

  • Memorial Health University Medical Center

    AVAILABLE

    Savannah, Georgia, 31404, United States

  • Nationwide Children's Hospital

    AVAILABLE

    Columbus, Ohio, 43205, United States

  • Penn State Hershey Medical Center

    AVAILABLE

    Hershey, Pennsylvania, 17033, United States

  • Southern Specialty Clinic

    AVAILABLE

    Flowood, Mississippi, 39232, United States

  • St. Luke's Mountain States Tumor Institute

    AVAILABLE

    Boise, Idaho, 83712, United States

  • Texas Children's Hospital_Houston

    AVAILABLE

    Houston, Texas, 77030, United States

  • The Children's Mercy Hospital

    AVAILABLE

    Kansas City, Missouri, 64108, United States

  • UMHAT Sveti Georgi EAD, Plovdiv, Clinic of Pediatrics

    AVAILABLE

    Plovdiv, 4002, Bulgaria

  • Univ TX Hlth Sci Ctr Houston

    AVAILABLE

    Houston, Texas, 77030, United States

  • University of California San Francisco UCSF

    AVAILABLE

    San Francisco, California, 94158, United States

  • Virginia Commonwealth University_Richmond_1

    AVAILABLE

    Richmond, Virginia, 23298-0461, United States

Conditions

Explore the condition pages connected to this study.