Lifeline offered to haemophilia patients exhausting all options
NCT ID NCT04921956
Summary
This program provides free, daily injections of the experimental drug concizumab to people with congenital haemophilia who cannot be adequately treated with currently approved medicines. It is designed for patients who have developed inhibitors to standard treatments or have poor vein access, making regular infusions difficult. Participants will receive the drug and be closely monitored for safety and effectiveness for several years, with regular clinic visits and blood tests.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Augusta University
AVAILABLEAugusta, Georgia, 30912, United States
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BI-LO Chrt Childn's Cancer Ctr
AVAILABLEGreenville, South Carolina, 29605, United States
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Children's Hosp-New Orleans
AVAILABLENew Orleans, Louisiana, 70118, United States
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Children's Hospital Los Angeles - Endocrinology
AVAILABLELos Angeles, California, 90027, United States
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Children's Hospital of Michigan
AVAILABLEDetroit, Michigan, 48201, United States
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Children's Nebraska
AVAILABLEOmaha, Nebraska, 68114, United States
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Childrens Hospital of Chicago
AVAILABLEChicago, Illinois, 60611, United States
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Connecticut Children's Medical Center
AVAILABLEHartford, Connecticut, 06106, United States
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Cook Children's Hospital-Hematology-Oncology
AVAILABLEFort Worth, Texas, 76104, United States
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ECU Sickle Cell Comp Clinic
AVAILABLEGreenville, North Carolina, 27834, United States
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Georgetown University Medical Center
AVAILABLEWashington D.C., District of Columbia, 20007, United States
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Indiana Hemophilia-Thromb Ctr
AVAILABLEIndianapolis, Indiana, 46260, United States
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Koagulationsmottagningen
AVAILABLESolna, 171 64, Sweden
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Louisiana Ctr for Adv Med-LCAM
AVAILABLEMadison, Mississippi, 39110, United States
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Memorial Health University Medical Center
AVAILABLESavannah, Georgia, 31404, United States
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Nationwide Children's Hospital
AVAILABLEColumbus, Ohio, 43205, United States
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Penn State Hershey Medical Center
AVAILABLEHershey, Pennsylvania, 17033, United States
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Southern Specialty Clinic
AVAILABLEFlowood, Mississippi, 39232, United States
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St. Luke's Mountain States Tumor Institute
AVAILABLEBoise, Idaho, 83712, United States
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Texas Children's Hospital_Houston
AVAILABLEHouston, Texas, 77030, United States
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The Children's Mercy Hospital
AVAILABLEKansas City, Missouri, 64108, United States
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UMHAT Sveti Georgi EAD, Plovdiv, Clinic of Pediatrics
AVAILABLEPlovdiv, 4002, Bulgaria
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Univ TX Hlth Sci Ctr Houston
AVAILABLEHouston, Texas, 77030, United States
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University of California San Francisco UCSF
AVAILABLESan Francisco, California, 94158, United States
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Virginia Commonwealth University_Richmond_1
AVAILABLERichmond, Virginia, 23298-0461, United States
Conditions
Explore the condition pages connected to this study.