Heart disease patients join forces to shape future research
NCT ID NCT06469918
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 27 times
Summary
This study creates a cooperative registry for 500 adults with congenital heart disease, their caregivers, or family members of deceased patients. Members share their medical journey data to help researchers design better future trials. The goal is to advance care by putting patients at the center of research planning.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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HeartWorks, Inc.
RECRUITINGRochester, Minnesota, 55901, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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