New test created to track nerve disease in kids
NCT ID NCT01203085
Summary
This study aimed to create and validate a new measurement tool specifically for children with Charcot-Marie-Tooth (CMT) disease, a genetic nerve disorder. Researchers tested 500 children and young adults (age 21 and under) by having them perform tasks like walking, climbing stairs, and hand function tests. The goal was to develop a reliable scale to track disease severity in children, which is needed for future treatment trials.
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Contacts and locations
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Locations
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C. Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, Italy
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Children's Hospital of Westmead
Sydney, New South Wales, 2145, Australia
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Dubowitz Neuromuscular Centre
London, UK, United Kingdom
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National Hospital of Neurology and Neurosurgery
London, England, WC1N 3BG, United Kingdom
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Nemours Children's Clinic
Orlando, Florida, 32827, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Stanford University
Palo Alto, California, 94305, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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University of Connecticut/Connecticut Children's Medical Center
Hartford, Connecticut, 06106, United States
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University of Iowa
Iowa City, Iowa, 52242, United States
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University of Michigan
Ann Arbor, Michigan, 48109, United States
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University of North Carolina
Chapel Hill, North Carolina, 27514, United States
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University of Rochester
Rochester, New York, 14642, United States
Conditions
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