Scientists create First-Ever test to track nerve disease in kids
NCT ID NCT01203085
Summary
This study created and tested a new measurement tool specifically for children with Charcot Marie Tooth (CMT) disease, a genetic nerve disorder. Researchers worked with 500 children and young adults (age 21 and under) who have CMT, having them perform tasks like walking, climbing stairs, and hand coordination tests. The goal was to develop a reliable way to measure how the disease affects children, which will help doctors track progression and test future treatments in clinical trials.
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Contacts and locations
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Locations
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C. Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, Italy
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Children's Hospital of Westmead
Sydney, New South Wales, 2145, Australia
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Dubowitz Neuromuscular Centre
London, UK, United Kingdom
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National Hospital of Neurology and Neurosurgery
London, England, WC1N 3BG, United Kingdom
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Nemours Children's Clinic
Orlando, Florida, 32827, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Stanford University
Palo Alto, California, 94305, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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University of Connecticut/Connecticut Children's Medical Center
Hartford, Connecticut, 06106, United States
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University of Iowa
Iowa City, Iowa, 52242, United States
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University of Michigan
Ann Arbor, Michigan, 48109, United States
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University of North Carolina
Chapel Hill, North Carolina, 27514, United States
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University of Rochester
Rochester, New York, 14642, United States
Conditions
Explore the condition pages connected to this study.