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Researchers launch major study to track rare bone cancer chordoma

NCT ID NCT03910465

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 27 times

Summary

This study follows 300 people aged 2 and older with chordoma, a rare bone cancer of the skull or spine. Researchers will track how the disease changes over time using scans, exams, and surveys. The goal is to better understand chordoma so future treatments and care can be improved.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-••••

Conditions

Explore the condition pages connected to this study.