Beyond the lungs: what really drives activity in cystic fibrosis?
NCT ID NCT01848392
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This study looks at why some adults with cystic fibrosis are more physically active than others, focusing on factors outside the lungs like nutrition, diabetes, bone health, and mood. Eighty stable adults will wear an activity monitor for a week and complete questionnaires. The goal is to find new ways to help people with CF stay active and improve their quality of life.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- What this could lead to
- If successful, this study could help identify which non-lung factors most influence physical activity in cystic fibrosis, guiding future supportive care strategies.
- What could go wrong
- This is an observational study with only 80 participants, so results may not apply to all people with CF. It does not test any treatment.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Participants
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80 people
The number who actually took part.
- Started
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Feb 2013
- Finished
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Mar 2016
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Adult patients with CF cared at Cochin adult CF centre, Paris
- Ages
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18 years and older
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Patients with CF (positive sweat test or 2 disease causing CFTR mutations) * Aged 18 or older * Regularly cared at Cochin adult CF centre * In clinical stable status Exclusion Criteria: * Pulmonary exacerbation in the 4 previous weeks * IV antibiotic course for pulmonary exacerbation in the 2 previous weeks * Pregnancy in female patients * Patient with history of lung transplantation * Patient on a waiting list for lung transplantation * Treatment of diabetes initiated for less than 3 months * Enteral nutrition initiated for less than 3 months
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Cochin Hospital
Paris, 75014, France
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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- Can a simple questionnaire reveal why some cystic fibrosis patients skip physiotherapy?
- Cystic fibrosis diabetes: do gut hormones and genes hold the key?
- Can a special lung scan catch cystic fibrosis damage earlier than standard tests?
- Can a pill replace the liquid? testing a new form of cystic fibrosis drug
- Triple therapy under the microscope: does it transform cystic fibrosis care?