What do CF patients really think about becoming parents?
NCT ID NCT04133246
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study looked at what cystic fibrosis (CF) patients and their spouses think and feel about becoming parents. Researchers held small group discussions and one-on-one interviews led by a psychologist to gather their views. The goal was to identify common themes and needs, so better support programs can be created for CF patients considering parenthood.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- What this could lead to
- If successful, this could help design better medical and social support programs for cystic fibrosis patients who want to become parents.
- What could go wrong
- This is a small, completed exploratory study with only 52 participants, so its findings may not apply to all CF patients. It does not test any treatment.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Phase
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Not a phased trial
Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.
- Participants
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52 people
The number who actually took part.
- Started
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Sep 2019
- Finished
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Dec 2020
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
- Ages
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18 years and older
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: For patients * Have cystic fibrosis * Be a parent and raise or have raised at least one child * Being followed in one of the two adult CF centers participating in the study For CF patients' spouses \- Live with the CF patient participating in the study For both CF patients and spouses * Being an adult (at least 18 y.o.) * Have a good level of French and good speaking skills Exclusion Criteria: * For both CF patients and spouses * Psychiatric pathology (borderline state, bipolarity and other psychotic disorders) * Serious somatic disease not related to cystic fibrosis
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Cochin Hospital
Paris, Île-de-France Region, 75012, France
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Foch Hospital
Suresnes, Île-de-France Region, 92150, France
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