Massive study aims to unlock cancer secrets in rare bone marrow diseases

NCT ID NCT00027274

Recruiting now Knowledge-focused Sponsor: National Cancer Institute (NCI) Source: ClinicalTrials.gov ↗

First seen Nov 01, 2025 · Last updated May 24, 2026 · Updated 37 times

Summary

This study looks at why people with certain rare bone marrow conditions (like Fanconi anemia) have a higher chance of getting cancer. Researchers will follow up to 4,000 participants and their family members over time to track cancer rates and find genetic or environmental risk factors. The goal is to better understand these cancers and pave the way for future prevention and screening trials.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

National Cancer Institute - Shady Grove
RECRUITING

Rockville, Maryland, 20850, United States
National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.

DIAMOND BLACKFAN ANEMIA DYSKERATOSIS CONGENITA FANCONI ANEMIA INHERITED BONE MARROW FAILURE SYNDROME, APLASTIC ANEMIA SHWACHMAN DIAMOND SYNDROME