Massive study aims to uncover cancer secrets in rare bone marrow disorders

NCT ID NCT00027274

First seen Nov 01, 2025 · Last updated May 13, 2026 · Updated 35 times

Summary

This study looks at families with inherited bone marrow failure syndromes (like Fanconi anemia) to understand why they have a higher risk of cancer. Researchers will track up to 4,000 participants over time using questionnaires, medical records, and lab tests. The goal is to find genetic and environmental factors that lead to cancer, which could help with future screening and prevention.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Cancer Institute - Shady Grove

    RECRUITING

    Rockville, Maryland, 20850, United States

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.