Scientists map the course of a rare brain disease in kids
NCT ID NCT04126005
First seen Apr 18, 2026 · Last updated May 13, 2026 · Updated 5 times
Summary
This study looked at the medical records of 67 children with Canavan disease and also followed some of them over time. The goal was to learn more about how the disease develops and changes as children grow. No new treatment was tested; instead, researchers gathered information to help design future studies and care plans.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for CANAVAN DISEASE are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Locations
-
Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
-
UCSF Benioff Children's Hospital Oakland
Oakland, California, 94609, United States
-
University Medical Center Hamburg-Eppendorf
Hamburg, 20246, Germany
Conditions
Explore the condition pages connected to this study.