New study maps the course of rare brain disease in kids
NCT ID NCT04126005
First seen Apr 18, 2026 · Last updated Apr 25, 2026 · Updated 1 time
Summary
This study looked at the medical records of 67 children with Canavan disease, a rare genetic brain disorder, and also followed some of them over time. The goal was to learn more about how the disease develops and changes as children grow. No new treatments were tested; instead, researchers gathered information to help design future studies and care plans.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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UCSF Benioff Children's Hospital Oakland
Oakland, California, 94609, United States
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University Medical Center Hamburg-Eppendorf
Hamburg, 20246, Germany
Conditions
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