20-Year study aims to unlock secrets of rare bone marrow diseases
NCT ID NCT05012111
First seen Nov 01, 2025 · Last updated May 22, 2026 · Updated 30 times
Summary
This study follows 1,000 people with bone marrow failure diseases for up to 20 years to learn how the diseases and treatments affect the body over time. Participants aged 2 and older, including family members, will have regular check-ups, blood tests, and other exams. The goal is to better understand long-term outcomes, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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