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Hope for a deadly disease: first trial tests pill to halt brain damage

NCT ID NCT06923072

Summary

This study is testing whether a pill called baricitinib can slow or stop the progression of brain and spine lesions in people with Kohlmeier-Degos disease, a rare and often fatal condition that causes blockages in small blood vessels. Twelve adults with neurological involvement from the disease will take the drug daily for 24 weeks while continuing their current medications, to see if it stabilizes their brain scans and improves their quality of life. The goal is to control the disease, as there is currently no approved treatment.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.