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Austria launches major heart disease registry to unlock HCM secrets

NCT ID NCT06368518

Knowledge-focused Sponsor: Medical University of Graz Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is a registry that will collect health information from 1000 people with hypertrophic cardiomyopathy (HCM) across Austria. Researchers will track symptoms, medical history, test results, and genetics to better understand the disease and improve future care. Participants will not receive any new treatment, but their data will help doctors learn more about HCM.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Mar 2024

Expected to finish

Mar 2044

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

The study population includes subjects who fulfill criteria of HCM and are treated in Austria.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patients admitted to the HCM outpatient clinic of participating centers of the HCM Registry * Interventricular septal thickness ≥ 13 mm and cardiomyopathy-specific red flags OR Interventricular septal thickness ≥ 15 mm not explainable by loading conditions OR Interventricular septal thickness ≥ 17 mm * Willingness and ability to provide signed informed consent form (ICF) prior to participation in any study-related procedures Exclusion criteria: * Age \< 18 years * Known cardiac amyloidosis

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Conditions

The condition(s) this trial relates to.

hypertrophic cardiomyopathy Hypertrophy, Left Ventricular

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Hypertrophic cardiomyopathy

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    14 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Clinic Cardinal Schwarzenberg

    RECRUITING

    Schwarzach im Pongau, State of Salzburg, 5620, Austria

  • Clinic Wels-Grieskirchen

    RECRUITING

    Wels-Grieskirchen, 4600, Austria

  • Favoriten Clinic Vienna

    ACTIVE_NOT_RECRUITING

    Vienna, State of Vienna, 1100, Austria

  • General Hospital St. Johann in Tirol

    RECRUITING

    Sankt Johann in Tirol, 6380, Austria

  • Hospital Graz 2 West

    RECRUITING

    Graz, Styria, 8020, Austria

  • Hospital Landesklinikum Wiener Neustadt

    RECRUITING

    Wiener Neustadt, Lower Austria, 2700, Austria

  • Hospital St. Josef Braunau

    RECRUITING

    Braunau am Inn, Upper Austria, 5280, Austria

  • Kepler University Hospital Linz

    RECRUITING

    Linz, Linz, 4021, Austria

  • Klinik Ottakring

    RECRUITING

    Vienna, State of Vienna, Austria

  • Medical University of Graz

    RECRUITING

    Graz, Styria, 8036, Austria

  • Medical University of Innsbruck

    RECRUITING

    Innsbruck, Tyrol, 6020, Austria

  • Medical University of Vienna

    RECRUITING

    Vienna, State of Vienna, 1090, Austria

  • Ordensklinikum Linz

    RECRUITING

    Linz, Upper Austria, 4020, Austria

  • Paracelsus Medical University of Salzburg

    RECRUITING

    Salzburg, State of Salzburg, 5020, Austria

  • University Hospital St. Pölten

    RECRUITING

    Sankt Pölten, Lower Austria, 3100, Austria

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