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Heart danger in muscle disease: 537 patients tracked for sudden death

NCT ID NCT00127582

First seen Mar 28, 2026 · Last updated May 21, 2026 · Updated 6 times

Summary

This study followed 537 adults with myotonic dystrophy type 1 for two years to see how often serious heart rhythm problems or sudden death occur. Researchers used noninvasive and invasive tests to find factors that might predict these events. The goal was to better understand and identify who is at highest risk, not to test a new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Catholic University of Sacred Heart

    Rome, 00168, Italy

Conditions

Explore the condition pages connected to this study.