Major study tracks health of people with rare hormone condition
NCT ID NCT04708431
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 32 times
Summary
This study follows people with androgen insensitivity syndrome (AIS) over many years to learn about their overall health, including bone strength, heart health, hormone levels, and tumor risks. Up to 650 participants of all ages will have regular check-ups, scans, and lab tests, but no experimental treatments are given. The goal is to better understand the condition and improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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