Major study tracks health of people with rare hormone condition

NCT ID NCT04708431

First seen Nov 01, 2025 · Last updated May 05, 2026 · Updated 31 times

Summary

This study follows 650 people with Androgen Insensitivity Syndrome (AIS), a rare condition where the body cannot respond to male hormones. Researchers will track health over time using blood tests, scans, and questionnaires to understand risks like bone health, heart health, and tumor formation. No treatments are tested—this is an observation-only study to improve future care.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.