Researchers map the slow decline of rare nerve disease
NCT ID NCT05008874
Summary
This study aimed to better understand how a rare, inherited nerve disorder called adrenomyeloneuropathy (AMN) gets worse over time. Researchers followed 65 adult men with AMN, tracking their walking ability and quality of life through regular check-ups. The goal was to gather detailed information to help design and test future treatments more effectively.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Locations
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Amsterdam UMC
Amsterdam, Netherlands
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Stanford Neuroscience Health Center
Stanford, California, 94304, United States
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University of Leipzig Medical Center
Leipzig, Germany
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University of Utah
Salt Lake City, Utah, 84112, United States
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Weill Medical College of Cornell University
New York, New York, 10065, United States
Conditions
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