AMN study seeks to map Disease's slow march
NCT ID NCT05008874
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 30 times
Summary
This study was designed to track how walking ability and quality of life change over time in adults with AMN, a rare genetic nerve disease. Researchers observed 65 men aged 18 and older who had the condition but no brain inflammation. The goal was to gather data to help design future treatments, though the study was stopped early.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Amsterdam UMC
Amsterdam, Netherlands
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Stanford Neuroscience Health Center
Stanford, California, 94304, United States
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University of Leipzig Medical Center
Leipzig, Germany
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University of Utah
Salt Lake City, Utah, 84112, United States
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Weill Medical College of Cornell University
New York, New York, 10065, United States
Conditions
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