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Can we stop ALS before it starts? new study follows families

NCT ID NCT03865420

First seen Jan 11, 2026 · Last updated May 24, 2026 · Updated 16 times

Summary

This study enrolls family members of people with inherited ALS who do not yet have symptoms. Researchers provide genetic counseling and testing, then follow participants yearly to track when and how early signs of the disease appear. The goal is to gather information that could lead to new ways to prevent or treat ALS.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

Locations

  • Columbia University

    RECRUITING

    New York, New York, 10032, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.