New european network aims to crack the code of rare amyloidosis
NCT ID NCT06205953
First seen Apr 18, 2026 · Last updated Apr 30, 2026 · Updated 2 times
Summary
This study is creating a large European registry of 400 people newly diagnosed with AL amyloidosis, a rare disease where abnormal proteins build up in organs. Researchers will collect medical data and blood samples to study the disease using advanced technology. The goal is to improve diagnosis, predict outcomes, and guide better management.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
RECRUITINGPavia, Italy
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Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
RECRUITINGPamplona, Spain
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Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
RECRUITINGHeidelberg, Germany
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UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
RECRUITINGUtrecht, Netherlands
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Universidad de la Republica Hospital de Clinicas "Dr Manuel Quintela"
RECRUITINGMontevideo, Uruguay
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics
ACTIVE_NOT_RECRUITINGMuttenz, Switzerland
Conditions
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