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Rare genetic syndrome study aims to map social challenges from childhood to adulthood

NCT ID NCT07469566

First seen Mar 22, 2026 · Last updated May 22, 2026 · Updated 10 times

Summary

This study follows 15 people with 7q11.23 microduplication syndrome (a rare genetic condition) to track how social skills develop over time. Researchers will use interviews, questionnaires, and developmental tests to understand the pattern of social difficulties from early childhood through adulthood. The goal is to identify key milestones and outcomes that can be used in future treatment trials.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Developmental Anomalies Reference Center, Genetics Department Woman Mother and Child Hospital, University Hospital of Lyon, Hospices Civils de Lyon

    Bron, 69677, France

    Contact

  • Reference Center of Rare Disease with Intellectual Disability- in Lyon, Woman Mother and Child Hospital, University Hospital of Lyon, Hospices Civils de Lyon

    Bron, 69677, France

    Contact

Conditions

Explore the condition pages connected to this study.