Rett Syndrome Research Trust

This study tests whether wearable biosensors can accurately measure symptoms like heart rate, breathing, sleep, and movement in people with Rett syndrome. About 30 participants will use the devices at home and during one overnight clinic visit. The goal is to validate these tools…

This registry collects information from caregivers of people with Rett syndrome to help researchers learn more about the condition. Caregivers can track symptoms and treatments over time, and share data to speed up research. Anyone with a Rett diagnosis can join, regardless of ag…