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Fshd Society

Clinical trials sponsored by Fshd Society, explained in plain language.

Trials to join now! 1

Patients unite to power FSHD research through new national registry

Knowledge-focused Recruiting now

BetterLife FSHD is a patient-driven registry and online platform for people with Facioscapulohumeral Muscular Dystrophy (FSHD). It aims to collect health and experience data from up to 5,000 participants through regular surveys to help researchers better understand the disease. T…

Sponsor: FSHD Society • Aim: Knowledge-focused

Last updated Mar 13, 2026 15:06 UTC