X-linked adrenoleukodystrophy
Clinical trials for X-linked adrenoleukodystrophy explained in plain language.
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Can a questionnaire reveal the hidden burden of a rare genetic disease in women?
Knowledge-focused Recruiting nowThis study looks at women who carry the gene for X-linked adrenoleukodystrophy (X-ALD), a rare inherited condition that mainly affects the nervous system. Although the disease is linked to the X chromosome, up to 80% of female carriers may develop symptoms like leg weakness and b…
Matched conditions: X-LINKED ADRENOLEUKODYSTROPHY
Sponsor: Leipzig University Medical Center • Aim: Knowledge-focused
Last updated Aug 29, 2026 00:00 UTC
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Massive leukodystrophy biobank aims to unlock disease secrets
Knowledge-focused Recruiting nowThis study collects medical information and biological samples (like blood or tissue) from up to 12,000 people with leukodystrophies—rare disorders that damage the brain's white matter. Researchers will use this data to find new genetic causes, develop biomarkers for future trial…
Matched conditions: X-LINKED ADRENOLEUKODYSTROPHY
Sponsor: Children's Hospital of Philadelphia • Aim: Knowledge-focused
Last updated Jun 27, 2026 07:55 UTC