UNDIAGNOSED DISEASE
Clinical trials for UNDIAGNOSED DISEASE explained in plain language.
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Hidden toll: how caring for family with inherited diseases affects health
Knowledge-focused CompletedThis research study aims to understand how caring for family members with inherited diseases affects caregivers' stress and health. Researchers surveyed and interviewed over 5,500 caregivers and family members to learn how support networks help people cope. The study focuses on i…
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated Apr 04, 2026 03:35 UTC
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The hidden struggle: parents face uncertainty when doctors Can't name their Child's illness
Knowledge-focused CompletedThis study aimed to understand how parents cope when their child has a serious medical condition that doctors cannot diagnose. Researchers surveyed 168 parents whose children had undiagnosed illnesses affecting at least two body systems for over two years. The study explored how …
Matched conditions: UNDIAGNOSED DISEASE
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated Mar 23, 2026 15:15 UTC