Rendu osler disease
Clinical trials for Rendu osler disease explained in plain language.
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New ultra-low dose CT could slash radiation for HHT lung checks
Diagnosis CompletedThis study tested whether an ultra-low dose chest CT scan can find lung blood vessel malformations in people with hereditary hemorrhagic telangiectasia (HHT) as well as the standard low-dose CT scan, but with much less radiation. 45 HHT patients received both scans, and radiologi…
Matched conditions: RENDU OSLER DISEASE
Sponsor: Hospices Civils de Lyon • Aim: Diagnosis
Last updated Jun 26, 2026 15:38 UTC
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Can a cancer drug curb severe bleeding in a rare genetic disorder?
Knowledge-focused CompletedThis study looks back at the medical records of 244 adults in France with hereditary hemorrhagic telangiectasia (HHT), also called Rendu-Osler disease, who were treated with the drug bevacizumab. The goal is to describe how the drug was used and to measure its impact on bleeding,…
Matched conditions: RENDU OSLER DISEASE
Sponsor: Hospices Civils de Lyon • Aim: Knowledge-focused
Last updated Aug 21, 2026 00:00 UTC
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Exercise echo may catch silent heart failure in rare HHT liver disease
Knowledge-focused CompletedThis completed pilot study looked at 47 adults with hereditary hemorrhagic telangiectasia (HHT) who also have liver involvement. Researchers used exercise echocardiography (heart ultrasound while pedaling) to measure lung artery pressure during exercise. The goal was to see if th…
Matched conditions: RENDU OSLER DISEASE
Sponsor: Hospices Civils de Lyon • Aim: Knowledge-focused
Last updated Jun 27, 2026 08:05 UTC