RASOPATHY
Clinical trials for RASOPATHY explained in plain language.
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Researchers dig through medical records to build roadmap for future heart treatments
Knowledge-focused Recruiting nowThis study aims to collect and analyze past medical information from infants diagnosed with a rare genetic heart condition called RAS-CM. Researchers will look at the health records of up to 100 eligible infants to understand how the disease naturally progresses without specific …
Matched conditions: RASOPATHY
Sponsor: Deutsches Herzzentrum Muenchen • Aim: Knowledge-focused
Last updated Apr 03, 2026 19:25 UTC
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Major study launches to unlock mysteries of rare genetic syndromes and cancer link
Knowledge-focused Recruiting nowThis study aims to learn more about a group of rare genetic conditions called RASopathies. Researchers will follow 500 people with these conditions and their family members over many years to understand their health challenges, especially their risk of developing cancer. The goal…
Matched conditions: RASOPATHY
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Mar 10, 2026 12:52 UTC