PROTEUS SYNDROME
Clinical trials for PROTEUS SYNDROME explained in plain language.
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Hope for rare overgrowth disorder: new drug trial launches
Disease control Recruiting nowThis study tests whether the drug miransertib can safely slow or stop the abnormal tissue growth in people with Proteus syndrome, a rare condition that begins in early childhood. About 45 participants aged 3 and older will take a daily pill for up to 4 years, with regular checkup…
Matched conditions: PROTEUS SYNDROME
Phase: PHASE2 • Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Disease control
Last updated May 19, 2026 12:00 UTC
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Scientists seek clues to rare overgrowth condition
Knowledge-focused Recruiting nowThis study aims to learn more about Proteus syndrome, a rare condition causing abnormal growth of bones, skin, and other tissues. Researchers will examine up to 1,500 participants to find the genetic causes and track how the disease changes over time. Participants undergo physica…
Matched conditions: PROTEUS SYNDROME
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated May 26, 2026 06:52 UTC