PROTEUS SYNDROME
Clinical trials for PROTEUS SYNDROME explained in plain language.
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Hope for rare overgrowth disease: first treatment trial launches
Disease control Recruiting nowThis study is testing whether a drug called miransertib can safely slow or stop the abnormal tissue overgrowth caused by Proteus syndrome, a rare genetic condition with no current treatments. Children and adults aged 3 and older with a confirmed diagnosis will take a daily pill f…
Matched conditions: PROTEUS SYNDROME
Phase: PHASE2 • Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Disease control
Last updated Apr 03, 2026 14:42 UTC
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Scientists seek genetic clues to mysterious overgrowth disorder
Knowledge-focused Recruiting nowThis study aims to learn more about Proteus syndrome, a rare disorder that causes abnormal and uneven growth of bones, skin, and other tissues. Researchers will observe up to 1,500 patients over time to understand the genetic causes, how symptoms change, and the overall impact of…
Matched conditions: PROTEUS SYNDROME
Sponsor: National Human Genome Research Institute (NHGRI) • Aim: Knowledge-focused
Last updated Apr 03, 2026 14:41 UTC