NOONAN SYNDROME
Clinical trials for NOONAN SYNDROME explained in plain language.
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Tracking growth and health in kids with rare genetic condition
Disease control ENROLLING_BY_INVITATIONThis study is creating a French registry to collect information on children with Noonan Syndrome who are being treated with Norditropin®, a growth hormone. It aims to track their long-term growth, monitor safety, and understand how treatment affects their quality of life. The stu…
Matched conditions: NOONAN SYNDROME
Sponsor: Novo Nordisk A/S • Aim: Disease control
Last updated Apr 02, 2026 14:56 UTC
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Weekly shot aims to boost height in kids
Disease control OngoingThis study is testing a new, once-a-week growth hormone injection called somapacitan in children who are shorter than average. It includes kids born small, or with Turner syndrome, Noonan syndrome, or unexplained short stature. The main goals are to see if the treatment is safe a…
Matched conditions: NOONAN SYNDROME
Phase: PHASE3 • Sponsor: Novo Nordisk A/S • Aim: Disease control
Last updated Apr 02, 2026 14:56 UTC
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New program aims to ease the burden for families facing rare childhood diseases
Symptom relief ENROLLING_BY_INVITATIONThis study is testing a support program called FACE-Rare for families caring for children with serious rare diseases. The program aims to help families plan for future medical decisions and address their own support needs. Researchers want to see if this improves the family's qua…
Matched conditions: NOONAN SYNDROME
Phase: NA • Sponsor: Children's National Research Institute • Aim: Symptom relief
Last updated Apr 02, 2026 14:57 UTC