NOONAN SYNDROME
Clinical trials for NOONAN SYNDROME explained in plain language.
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New weekly shot may help short kids grow taller
Disease control OngoingThis study tests if a new growth hormone medicine called somapacitan is safe and works for children who are very short due to being born small, or having Turner, Noonan, or idiopathic short stature. About 47 children will get a weekly injection at home for up to 3 years. The main…
Matched conditions: NOONAN SYNDROME
Phase: PHASE3 • Sponsor: Novo Nordisk A/S • Aim: Disease control
Last updated May 26, 2026 04:35 UTC
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New registry to monitor norditropin® in kids with noonan syndrome
Knowledge-focused ENROLLING_BY_INVITATIONThis study is a registry that will follow up to 221 children with Noonan Syndrome who are already taking or starting Norditropin® for short stature. Researchers will track growth over time, any side effects, and quality of life. The study does not provide treatment—it simply obse…
Matched conditions: NOONAN SYNDROME
Sponsor: Novo Nordisk A/S • Aim: Knowledge-focused
Last updated May 22, 2026 14:04 UTC
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New study aims to support families of children with rare diseases
Knowledge-focused ENROLLING_BY_INVITATIONThis study looks at the unmet palliative care needs of children with rare diseases and their family caregivers. Researchers will test a program called FACE-Rare to see if it helps families prepare for medical decisions and improves quality of life. About 480 children and their ca…
Matched conditions: NOONAN SYNDROME
Phase: NA • Sponsor: Children's National Research Institute • Aim: Knowledge-focused
Last updated May 22, 2026 13:51 UTC