Myopathy; hereditary

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Global study tracks rare muscle disease to pave way for future treatments

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This study follows children and adults worldwide who have a rare genetic muscle disease called TNNT1 myopathy. Researchers aim to document how the disease progresses over time, including survival and motor milestones. The goal is to identify reliable measures that can be used in …

Matched conditions: MYOPATHY; HEREDITARY

Sponsor: Clinic for Special Children • Aim: Knowledge-focused

Last updated Jun 27, 2026 14:01 UTC

Myopathy; hereditary

Get alerted when new Myopathy; hereditary trials appear

Global study tracks rare muscle disease to pave way for future treatments