Hereditary hemorrhagic telangiectasia (HHT)
Clinical trials for Hereditary hemorrhagic telangiectasia (HHT) explained in plain language.
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HHT nosebleed drug shows promise in long-term follow-up study
Disease control CompletedThis study follows 62 adults with hereditary hemorrhagic telangiectasia (HHT) who previously took pomalidomide in a clinical trial. Researchers want to see if the drug safely reduces nosebleed severity and the need for iron or blood transfusions over time. Participants take pomal…
Matched conditions: HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT)
Sponsor: Massachusetts General Hospital • Aim: Disease control
Last updated Jul 12, 2026 00:00 UTC
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Can a cancer drug curb severe bleeding in a rare genetic disorder?
Knowledge-focused CompletedThis study looks back at the medical records of 244 adults in France with hereditary hemorrhagic telangiectasia (HHT), also called Rendu-Osler disease, who were treated with the drug bevacizumab. The goal is to describe how the drug was used and to measure its impact on bleeding,…
Matched conditions: HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT)
Sponsor: Hospices Civils de Lyon • Aim: Knowledge-focused
Last updated Aug 21, 2026 00:00 UTC
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New study reveals how HHT symptoms impact daily life
Knowledge-focused CompletedThis study looked at how symptoms of hereditary hemorrhagic telangiectasia (HHT) affect patients' quality of life. Researchers used a special questionnaire developed with patient input to measure different aspects like physical limits, worry about bleeding, and social relationshi…
Matched conditions: HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT)
Sponsor: Hospices Civils de Lyon • Aim: Knowledge-focused
Last updated Jun 27, 2026 07:51 UTC