HEREDITARY AUTOINFLAMMATORY DISEASES

Clinical trials for HEREDITARY AUTOINFLAMMATORY DISEASES explained in plain language.

Never miss a new study

Get alerted when new HEREDITARY AUTOINFLAMMATORY DISEASES trials appear

Sign up with your email to follow new studies for HEREDITARY AUTOINFLAMMATORY DISEASES, keep track of the ones that matter, and come back to a personal dashboard instead of checking manually.

Vår säkerhetsrekommendation!

Genom att skicka in godkänner du våra Användarvillkor

Completed 1

Patients' voices shape new tool to measure hidden toll of rare diseases

Knowledge-focused Completed

This study aimed to create a new questionnaire to measure how autoinflammatory diseases affect patients' quality of life. Researchers interviewed 39 patients and parents across different age groups to understand their daily challenges. The goal is to develop a tool that helps doc…

Matched conditions: HEREDITARY AUTOINFLAMMATORY DISEASES

Phase: NA • Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused

Last updated Mar 23, 2026 15:15 UTC

HEREDITARY AUTOINFLAMMATORY DISEASES

Get alerted when new HEREDITARY AUTOINFLAMMATORY DISEASES trials appear

Patients' voices shape new tool to measure hidden toll of rare diseases