GENETIC SYNDROME
Clinical trials for GENETIC SYNDROME explained in plain language.
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Parent training may ease mental health struggles in kids with rare genetic disorders
Symptom relief CompletedThis study tested a 22-week online parenting program (Incredible Years) for families of children aged 3-7 with genetic abnormalities and mental health or developmental problems. 53 families were randomly assigned to the program or usual care. The goal was to see if parents would …
Matched conditions: GENETIC SYNDROME
Phase: NA • Sponsor: Fundació Sant Joan de Déu • Aim: Symptom relief
Last updated Jun 22, 2026 11:56 UTC
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Prenatal test talk: can better conversations improve care?
Knowledge-focused CompletedThis study looked at how doctors and pregnant women discuss noninvasive prenatal testing (NIPT), a blood test that checks for certain genetic conditions in the first trimester. Researchers observed 691 pregnant women and their doctors to see how decisions about testing were made.…
Matched conditions: GENETIC SYNDROME
Phase: NA • Sponsor: The Cleveland Clinic • Aim: Knowledge-focused
Last updated Jun 18, 2026 11:52 UTC
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New study maps developmental milestones in babies with rare genetic conditions
Knowledge-focused CompletedThis study followed 43 infants with rare genetic disorders to track their development from birth up to age 3, with medical records reviewed until age 18. Researchers used a standard developmental assessment tool to understand each child's unique needs. The goal was to gather info…
Matched conditions: GENETIC SYNDROME
Sponsor: Boston Children's Hospital • Aim: Knowledge-focused
Last updated Jun 17, 2026 12:02 UTC