FSHD - facioscapulohumeral muscular dystrophy
Clinical trials for FSHD - facioscapulohumeral muscular dystrophy explained in plain language.
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Hope for FSHD: new drug enters final stage of testing
Disease control Recruiting nowThis phase 3 trial tests an experimental drug called AOC 1020 in 200 adults with facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that causes progressive muscle weakness. Participants receive either the drug or a placebo by IV infusion. The study measures muscle…
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase 3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated Jul 29, 2026 00:00 UTC
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Could umbilical cord stem cells ease muscle weakness in FSHD?
Symptom relief Recruiting nowThis early-stage study tests whether stem cells from umbilical cord lining can safely help people with FSHD, a genetic muscle-weakening disease. Sixteen adults will receive two doses of the cells and two doses of a placebo (saline) through an IV, in random order. The main goal is…
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase 1 • Sponsor: Restem, LLC. • Aim: Symptom relief
Last updated Jun 27, 2026 08:02 UTC
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FSHD patients unite: new registry aims to accelerate research and care
Knowledge-focused Recruiting nowThis study creates a registry for people with facioscapulohumeral muscular dystrophy (FSHD) to share their health experiences and data. Up to 5,000 participants in the U.S. will provide information through surveys to help researchers better understand the disease and develop impr…
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:07 UTC