FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Clinical trials for FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY explained in plain language.
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New hope for FSHD: phase 3 trial of AOC 1020 begins
Disease control Recruiting nowThis study tests an experimental drug called AOC 1020 for facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that causes progressive muscle weakness. About 200 adults with a confirmed FSHD diagnosis who can still walk will receive either the drug or a placebo by I…
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated May 26, 2026 08:32 UTC
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Could umbilical cord stem cells ease rare muscle disease?
Symptom relief Recruiting nowThis early-stage study tests whether stem cells from umbilical cord lining are safe and can help reduce symptoms of facioscapulohumeral muscular dystrophy (FSHD), a genetic disease that causes muscle weakness. Sixteen adults with FSHD will receive two doses of the stem cells and …
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE1 • Sponsor: Restem, LLC. • Aim: Symptom relief
Last updated May 19, 2026 12:01 UTC
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New registry aims to unlock FSHD mysteries through patient data
Knowledge-focused Recruiting nowThis study creates a registry for people with facioscapulohumeral muscular dystrophy (FSHD) to share their health experiences and data. Up to 5,000 participants in the U.S. will provide information on symptoms, progression, and quality of life. The goal is to help researchers bet…
Matched conditions: FSHD - FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated May 19, 2026 11:47 UTC