EPIDERMOLYSIS BULLOSA
Clinical trials for EPIDERMOLYSIS BULLOSA explained in plain language.
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New hope for painful bandage changes in rare skin disease
Symptom relief CompletedThis study tested whether a numbing cream (ropivacaine) can reduce severe pain during bath and dressing changes in children and young adults with epidermolysis bullosa, a rare genetic skin condition. Ten participants applied the cream before dressing changes over five days. The g…
Matched conditions: EPIDERMOLYSIS BULLOSA
Phase: NA • Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Symptom relief
Last updated May 15, 2026 11:55 UTC
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Rare disease kids avoid opioids for wound care – study seeks answers
Knowledge-focused CompletedThis study looked at why children with a rare skin disease called epidermolysis bullosa often don't take their prescribed opioid pain medicine before painful baths and bandage changes. Researchers interviewed 10 children and their parents to understand the barriers. The goal was …
Matched conditions: EPIDERMOLYSIS BULLOSA
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 22, 2026 13:51 UTC