DRAVET SYNDROME
Clinical trials for DRAVET SYNDROME explained in plain language.
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One-Year watch: can CBD oil help control devastating seizures?
Disease control Recruiting nowThis study observes about 100 children and adults with severe, hard-to-treat epilepsy syndromes (LGS, Dravet, or TSC) who are already prescribed a CBD-based oral medication (Epidyolex®) by their doctor. Researchers will follow participants for one year to see how well they stay o…
Matched conditions: DRAVET SYNDROME
Sponsor: Jazz Pharmaceuticals • Aim: Disease control
Last updated Apr 03, 2026 14:42 UTC
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New drug trial aims to tame severe seizures in rare epilepsy
Disease control Recruiting nowThis study is testing whether an investigational drug called LP352 can safely reduce seizure frequency in children and adults with Dravet syndrome, a rare and severe form of epilepsy. Approximately 160 participants will receive either LP352 or a placebo (inactive substance) for a…
Matched conditions: DRAVET SYNDROME
Phase: PHASE3 • Sponsor: Longboard Pharmaceuticals • Aim: Disease control
Last updated Apr 02, 2026 14:57 UTC
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One-Time gene injection aims to tame devastating childhood seizures
Disease control Recruiting nowThis study is testing a one-time gene therapy called ETX101 for children with Dravet syndrome, a severe form of epilepsy. The goal is to see if delivering a corrected gene directly to the brain can safely reduce the number of seizures and improve a child's learning and developmen…
Matched conditions: DRAVET SYNDROME
Phase: PHASE1, PHASE2 • Sponsor: Encoded Therapeutics • Aim: Disease control
Last updated Apr 02, 2026 14:57 UTC
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New hope for kids with severe epilepsy: groundbreaking trial targets root cause
Disease control Recruiting nowThis study is testing an investigational medicine called zorevunersen (STK-001) for children and adolescents with Dravet syndrome, a severe form of epilepsy. The goal is to see if the medicine can safely reduce the number of major seizures and improve behavior, thinking, and qual…
Matched conditions: DRAVET SYNDROME
Phase: PHASE3 • Sponsor: Stoke Therapeutics, Inc • Aim: Disease control
Last updated Mar 30, 2026 14:29 UTC
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Scientists launch 4-Year quest to map dravet Syndrome's impact on growing minds
Knowledge-focused Recruiting nowThis study aims to better understand how Dravet syndrome, a severe genetic epilepsy, affects development over time. Researchers will follow 50 children and young adults (ages 6 months to 21 years) for four years, tracking their motor skills, thinking abilities, and daily living s…
Matched conditions: DRAVET SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:29 UTC
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Major study launches to track 1000 children with rare epilepsies
Knowledge-focused Recruiting nowThis study aims to better understand rare childhood epilepsies by following 1000 children and adolescents in real-world settings. Researchers will track how different treatments affect seizure frequency and how thinking skills and mental health change over time. The goal is to ga…
Matched conditions: DRAVET SYNDROME
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Mar 24, 2026 12:02 UTC