Craniosynostoses
Clinical trials for Craniosynostoses explained in plain language.
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Nano-ink gel could replace repeated skull surgeries for kids with rare genetic disorders
Disease control Recruiting nowThis early-stage study aims to develop a personalized treatment for children with syndromic craniosynostosis, a group of rare genetic disorders where skull bones fuse too early. The approach uses a nano-engineered gel to deliver custom genetic medicine directly to the affected ar…
Matched conditions: CRANIOSYNOSTOSES
Sponsor: Fondazione Policlinico Universitario Agostino Gemelli IRCCS • Aim: Disease control
Last updated Sep 10, 2026 00:00 UTC
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Bone cell study explores direct effects of rickets drug
Knowledge-focused Recruiting nowThis study looks at bone cells from children having surgery for craniosynostosis (early skull bone fusion). Researchers want to see how burosumab and vitamin D directly affect these cells, especially in children with a rare bone disease called hypophosphatemic rickets. The goal i…
Matched conditions: CRANIOSYNOSTOSES
Sponsor: Hospices Civils de Lyon • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:07 UTC
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New monitoring method may improve safety for infant skull surgery
Knowledge-focused Recruiting nowThis study looks at 30 infants (3-8 months old) having surgery for craniosynostosis, a condition where skull bones fuse too early. Researchers want to see if a new monitoring method (PRAM) can better track blood pressure and fluid loss than standard monitors. The goal is to impro…
Matched conditions: CRANIOSYNOSTOSES
Sponsor: IRCCS Azienda Ospedaliero-Universitaria di Bologna • Aim: Knowledge-focused
Last updated Jun 27, 2026 07:53 UTC