Amish nemaline myopathy

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Global study tracks rare muscle disease to pave way for future treatments

Knowledge-focused Recruiting now

This study follows children and adults worldwide who have a rare genetic muscle disease called TNNT1 myopathy. Researchers aim to document how the disease progresses over time, including survival and motor milestones. The goal is to identify reliable measures that can be used in …

Matched conditions: AMISH NEMALINE MYOPATHY

Sponsor: Clinic for Special Children • Aim: Knowledge-focused

Last updated Jun 27, 2026 14:01 UTC

Amish nemaline myopathy

Get alerted when new Amish nemaline myopathy trials appear

Global study tracks rare muscle disease to pave way for future treatments