ALD (ADRENOLEUKODYSTROPHY)
Clinical trials for ALD (ADRENOLEUKODYSTROPHY) explained in plain language.
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New ALD registry aims to unlock secrets of rare disease
Knowledge-focused Recruiting nowThis study creates a national registry for people with adrenoleukodystrophy (ALD) and their families. Researchers will collect medical records and survey data every six months to understand how the disease progresses and to find biological markers. Up to 1,000 participants of any…
Matched conditions: ALD (ADRENOLEUKODYSTROPHY)
Sponsor: Masonic Cancer Center, University of Minnesota • Aim: Knowledge-focused
Last updated May 26, 2026 09:07 UTC
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Massive leukodystrophy biobank aims to unlock secrets of rare brain diseases
Knowledge-focused Recruiting nowThis study is creating a large collection of medical data and biological samples from people with leukodystrophies—rare disorders that damage the brain's white matter. Researchers will use this information to discover new genetic causes, develop better diagnostic tools, and track…
Matched conditions: ALD (ADRENOLEUKODYSTROPHY)
Sponsor: Children's Hospital of Philadelphia • Aim: Knowledge-focused
Last updated May 26, 2026 08:32 UTC