ALBINISM
Clinical trials for ALBINISM explained in plain language.
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Rare eye disease DNA bank seeks 1,000 volunteers to unlock genetic secrets
Knowledge-focused Recruiting nowThis study aims to expand a large collection of DNA samples and eye health information from people with rare inherited eye diseases, such as aniridia, Best disease, and albinism. Researchers will use this data to better understand the genetic causes of these conditions and to hel…
Matched conditions: ALBINISM
Sponsor: National Eye Institute (NEI) • Aim: Knowledge-focused
Last updated May 26, 2026 11:12 UTC
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New study aims to measure the hidden toll of rare skin conditions
Knowledge-focused Recruiting nowThis study looks at how 9 rare skin diseases affect people's lives, including their emotions, social life, finances, and physical health. Researchers will ask patients and their families to fill out surveys to create a 'burden score' for each disease. The goal is to better unders…
Matched conditions: ALBINISM
Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused
Last updated May 22, 2026 14:02 UTC