Severe hemophilia B

MONDO:0015715

Severe hemophilia B is a form of hemophilia B characterized by a large deficiency of factor IX leading to frequent spontaneous hemorrhage and abnormal bleeding as a result of minor injuries, or following surgery or tooth extraction.

Also known as: severe factor IX deficiency, severe haemophilia type B, severe hemophilia type B

22 clinical trials for this condition and its sub-types, 9 tagged with Severe hemophilia B itself.

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Where it sits in the disease tree

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↑ Hemophilia B (91)

Including sub-types (22) Tagged with Severe hemophilia B (9)

Trials to join now! 2 Not yet recruiting 1 Not yet finished but already full! 3 Completed 3

Growing up with hemophilia: new study tracks health habits from teen to adult

Knowledge-focused Not yet recruiting

This study follows 75 young adults with severe hemophilia who were part of an earlier study as teens. Researchers want to see if their healthcare habits change as they become adults and what factors help them stick to treatment. The goal is to understand how to support a smooth t…

Sponsor: Assistance Publique Hopitaux De Marseille • Aim: Knowledge-focused

Last updated Jun 27, 2026 09:06 UTC

Severe hemophilia B

Where it sits in the disease tree

Growing up with hemophilia: new study tracks health habits from teen to adult