NF2-related schwannomatosis
MONDO:0007039A tumor-prone disorder characterized by the development of multiple schwannomas and meningiomas.
Also known as: acoustic neurofibromatosis, NF2, NF2-related schwannomatosis, SWNV, bilateral acoustic neurofibromatosis, central neurofibromatosis, full NF2, full neurofibromatosis type 2
52 clinical trials for this condition and its sub-types, 21 tagged with NF2-related schwannomatosis itself.
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New hope for rare nerve tumor disorder: Multi-Drug trial launches
Disease control Recruiting nowThis study tests several experimental drugs in people with NF2-related schwannomatosis, a genetic condition that causes non-cancerous tumors on nerves. The goal is to see if these drugs can shrink tumors and control the disease. About 109 participants will receive one of three dr…
Phase 2 • Sponsor: Scott R. Plotkin, MD, PhD • Aim: Disease control
Last updated Sep 04, 2026 00:00 UTC
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NF2 patients wanted for Decade-Long observation study
Knowledge-focused Recruiting nowThis study follows 269 people with neurofibromatosis type 2 (NF2) for up to 10 years to learn how the disease progresses. Participants will have yearly exams, MRI scans, hearing tests, and blood draws. The goal is to understand tumor growth, hearing loss, and speech or swallowing…
Sponsor: National Institute of Neurological Disorders and Stroke (NINDS) • Aim: Knowledge-focused
Last updated Sep 03, 2026 00:00 UTC
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Skin clues could unmask rare nerve disease in kids
Knowledge-focused Recruiting nowThis study looks at children under 15 with neurofibromatosis type 2 (NF2), a rare genetic condition that causes nerve tumors. Researchers want to see if skin and mouth lesions can help diagnose NF2 earlier than current methods, which rely on hearing, nerve, and eye symptoms. By e…
Sponsor: Centre Hospitalier Universitaire de Nice • Aim: Knowledge-focused
Last updated Jul 01, 2026 00:00 UTC
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Hunt for hidden cancer genes: families needed to unlock hereditary secrets
Knowledge-focused Recruiting nowThis study aims to discover new genes that may cause certain cancers to run in families. Researchers will collect blood samples and health information from 1,500 people in families where multiple members have had cancer, especially childhood cancers. The goal is to build a regist…
Sponsor: St. Jude Children's Research Hospital • Aim: Knowledge-focused
Last updated Jun 27, 2026 14:00 UTC